Off Days and Off Weeks

People have off days, and even off weeks. Usually that means you're having a bad time of things; things aren't going your way or you're just having a run of bad luck. For us this means we're not having some medical intrusion that day or Karen gets a week off from chemo. 

This wasn't one of those. This was a busy week with visits from our new pallative home care team which consisted of a RN, a physical therapist and a social worker. We had to have a blood draw and work up. We had our Oncologist visit plus two hour chemo session and capped it all off with another visit to the hospital for a thoracentesis.
​This last one, the thoracentesis, is the procedure where a needle is guided via ultrasound to just outside the lung and fluid is removed. The fluid as it accumulates keeps squeezing the lung, making it harder and harder to catch a breath despite being on oxygen 24/7.

Definitly not an off week. Our next off week might be the week between Christmas and New Year. That would be a great present.

You would think with all the negative stuff that goes with cancer and treatments that I would always be very sympathetic. Karen's lack of mobility is frustrationg. She's always been active so finding fulfilling activities is challenging. She spends more time on social media; which has its plus's and minus's. The minus being her love hate relationship with Facebook. After a few months of her liking and sharing odd things as she purused Facebook signed in as me I signed her up for her own account...behind her back..without asking.
I think she'll eventially forgive me because frankly she doesn't have anyone else willing to deliver cookies and milk at a moments notice.  In the meantime she's taking friend requests.
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Photo - William Evertson - Holding Karen's hand; waiting for the thoracentesis.

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